Monday, July 25, 2011

Mondays....

Since becoming a stay at home mom 2 yrs ago. Mondays have become alot different but also kind the same as when I worked. I still have to get up early, and do lots of paperwork and make lots of phone calls, the big difference is now I do all that with diapers, sippy cups, and kids that only get fussy when I'm on the phone with people I've been trying to get a hold of all day!! ugh! But even with all that and the sleepless nights, big huge messes, whining and crying, I wouldnt trade this life for anything. My kids can drive me crazy but at the same time melt my heart and make me laugh. They are waaaay better than working with adults!! : D

Friday, July 22, 2011

Potty Training Time!

So it's time to start potty training D. This is so difficult but needed. She shows interest in the potty so I'm hoping she's ready. She is my first potty trainee, I am kind of excited, C unfortunately is still not trained not sure he ever will, since I see no interest from him. But anyways, so we started out the normal potty training way : sit her on it every couple hours but then she started to hate it, I think it was more of asserting her independence, why should I tell her when to sit on the potty? (makes sense) then I couldnt even get her to put her but down for 2 sec. and its not that she didnt like being in the bathroom, far from it. Most days I cant keep her away from brushing her teeth and washing her hands. But sitting on the potty seems to be on of the worst things for her. Then I discovered stickers!! Oh my how my daughter loves to peel them off and stick them onto another sheet. So I taped up some paper on the wall next to her potty and now I get 5 min. of potty time while she decorates paper. yay! Except for the fact she wont do any of her business on there!! I just dont know how to explain to her to pee, she gets poop but she wont tell me when she's going #2 yet. and I'm just hoping we will get some random occurance of #1 during our sticker art sessions. I think I'll start saving her pages of stickers. Anyone know how many stickers it takes to get a 2 yr old potty trained?? --- I found the following on pinterest.. one day she will go potty.. I hope!!! http://www.parenting.com/gallery/how-to-potty-train

Tuesday, July 19, 2011

Finally the end of my day! Oh wait my wonderful Angel Chance is wide awake whining.......... Chance is 6 yrs old and has Angelman Syndrome. (more info check out www.angelman.org or www.cureangelman.org) Since he is completely non verbal and whining I have to play detective quite often to figure out what's wrong. This is not fun, one of the worst parts of having a non-verbal child. I wish I could just read his mind. Please tell me what hurts, what's uncomfortable, whats annoying, anything. :( Ok pity parties over turns out he just doesnt want to sleep! Like most kids that age! It's so weird how one minute I feel like the average mom and the next I feel profoundly different, I suppose because my oldest child is profoundly different and at the same time very typical. He loves everything most 6 yr old boys love... monster trucks, super hero movies, sporting events, and annoying his younger sister! But of course he is different than most because he cant walk on his own YET, has no verbal words (still can get a point across), movement disorder with severe sensory dysfunction and the no good horrible seizures. His body does not work well for him, but his mind is beautiful... He finds joy in EVERYTHING. Sure he has his moments when he is upset or feels ill... even in those times if he is crying and whining, he can still crack a smile and give a giggle if something catches his attention. I love that about him. Angelman Syndrome has given us alot of challenges and definitely played a huge part in giving us the happy chaotic life I'm writing here about. Although Angelman Syndrome sucks, our community is fabulous. Most of us dont live near each other but because of the internet we are here for each other through it all. My AS family has become family. The love and support we get and give to each other is something I never would have guessed I'd have when I gave birth to my beautiful boy 6.5 yrs ago. But I am so glad I have it.


Wow, I cant believe how much I've typed so far! I got a lot to say I guess! I'll stop here but if you want to help my son please visit www.helpsavetheangels.com and vote in the vivant gives back contest through facebook. Vote for FAST and help them win $250K that will go to research. Our scientists have already cured AS in mice and your vote could help them discover how to treat AS in humans. Thanks so much :)

My First Post!! Welcome to my happy Chaos!!

So this is my first post. I'm in no way a writer so if my sentances run together, and sometimes I dont make sense, well that's the way I talk so deal : P! But if you can look past grammatical errors, you will read about my crazy life as a stay at home mom, happy wife, special needs community member, neurotic, buddhist, spiritual, creative person. I love sharing my life with others sometimes way more than I should be (so blogging should be perfect!). Now my  beautiful little 2 yr old is getting up from her nap so I will be posting more later.............