Wednesday, September 12, 2012

Help me cure Angelman Syndrome!

I am writing this blog today because of my first born son,Chance. He is the light of my life. He also has Angelman Syndrome. I've mentioned it before on this blog and this time you can help me. Angelman Syndrome is caused by a random deletion on Chance's 15th chromosome. It has caused him to be non-verbal, he cannot walk, he has seizures that are sometimes very severe. He also suffers from severe sensory dysfunction and somedays it makes it very hard for him to handle all the sensory input from the world which makes it hard to live a full life. Through all his struggles he remains happy and full of love.

The Foundation for Angelman Syndrome Therapeutics works hard every day to cure this syndrome. It has already been cured in a mouse model. Any money this foundation takes in goes straight out to research. Last year they won $250,000 in a charity contest and used every cent to fund a clinical trial that is currently in progress. This year they are in a contest through Chase bank. They need help to win, and it only takes a few clicks.

STEP ONE: "like" Chase Community Giving here:
We can do this together <3

If anyone would like to share this picture or links please go right ahead, This means so much to me! Thank you! 


  1. I am your latest follower and thank you for posting. I just voted!
    I would appreciate a follow back.
    One Chic Mom

  2. Never heard of Angelman. "liking" and "voting" for you. Found you from the hop. Glad to have had the opportunity to hear about this.

    1. Thank you! It is a very rare syndrome, about 1 in 20,000.

  3. New Linky and Facebook follower. I'm from MBC. Come visit me at Living Life Wright ( Would love it if you would follow back.

  4. good luck to all of you. he is beautiful.